Yesterday was a busy day.
First, the Social Worker came by the house and talked to Mom. She got up and sat in her wheelchair and ate breakfast. Unusual considering she's been in bed mostly the whole time for the past week or so.
That was then followed up with the care worker, who helped her get a shower in. It was decided that this was the last shower she would be able to take because it was VERY difficult to get her back up the stairs and into her wheelchair. Spongebath and towels, etc going forward.
Then I went to the Cemetery, picked out the plot, tombstone, and vault. The tombstone thing is all software based. You designed it from a website and they send it away and you get your tomb. The days of hammer and chisel are long gone. It's probably all flow-jet these days. I showed pictures of everything to Mom when I got back and she was very happy and actually said that she would brag about it to her friend Diane. Weird thing to brag about, but that's how it is right now.
This was then followed up with a visit from the nurse. Mom has been experiencing some pain on her face. The nurse said it wasn't typical of cancer, and that it may be related to cranial pressure. She is going to get some steroids delivered to the house and we're going to try that. My Mom was adamant that she DID NOT WANT to take any more medication. I told her that she wasn't even on very much medication. She takes 800mg of Ibuprofen every six hours, and a stool softener.. That's it. Unless she has really bad pain, we give her a 5mg Vicodin. (Weak)
So after I told her she should try it, she agreed. But it further demonstrated to me, that she did not want to have the chemotherapy done that could have prolonged her life (Suffering?) any further since her condition was incurable. She does not like taking all the drugs. So that is that. They haven't come in yet, so I don't know how she will react, but supposedly she'll gain more energy and her appetite will improve.
By the end of the night, she brought up having to see the doctor again. I've come to the conclusion that she must be having dreams while sleeping and then misremembering them as real events. So long as they aren't nightmares, I think we're doing ok. Though I do have to have strong discussions telling her that I'm absolutely positively sure that she does not have to go to the doctor. She says things like, "It was written on a piece of paper, you should check." or "I know for a fact that today we're supposed to go there to get tests done." None of which is true. When you're on Hospice, you don't leave. They come to you.
Lastly, I updated Brian on everything and he pointed out that he wasn't happy with the food situation in the house. Apparently having to make food from scratch isn't his deal. So now I'll have to go buy some ready-made boxed meals so he can manage. That's funny to me. How does a guy with three kids not know how to cook something?
I've also started to put the medication into little cups to prevent anyone from giving Mom the wrong stuff. Had a couple incidents where she got over medicated and decided that leaving people with instructions is fraught with problems in relying on their memory. So will just manage the meals and drugs now even when I'm not there. Which is only one day a week.
Oh... Yeah, and then late at night I hear this radio playing. I go down to where she's sleeping and I'm like, "Mom. Are you alright?" and she starts laughing because it was her iPhone, she had accidentally tapped play on an audio book and didn't know how to shut it off. The other day she tried to answer the phone by using the TV remote.
So, she ends up telling me that her bed is wet and she doesn't know why. I asked her if she pee'd the bed. She said she didn't know. Oh brother. So I asked her to get up so I could change her sheets, but she refused and said I could change them later, it wasn't so bad.
Am I tired? Yes.